The Hope2Sleep Charity Team
Kath Hope – Founder & CEO
Kath was diagnosed with severe sleep apnoea back when it was rare for an average sized woman to be considered to have sleep apnoea – let alone severe. It was when she got her shock diagnosis that the whole family realised her mum had too been a sufferer, but unfortunately she had already died of her first sudden heart attack at the age of 49. Kath was determined that history wasn’t going to repeat itself and she wouldn’t leave her own children without a mother or with a sick one due to untreated sleep apnoea, which is why she went to great lengths to ensure she used her CPAP machine all night and every night. She sourced products worldwide to get more comfortable sleep, not realising just how many other people needed added comfort too – hence the start of Hope2Sleep.
Over the years, Kath has worked with sleep clinics looking for help for their own patients with their vital therapy, she is the ‘Expert Patient’ at Guy’s & St Thomas’ Sleep Clinic, and was also on the Advisory Panel during the British Lung Foundation’s 3-year Sleep Apnoea Campaign. This included a ground-breaking event with Kath being a speaker at their Parliamentary Reception in the House of Commons to bring much-needed awareness to MPs.
Kath’s background is teaching, and despite the long hours involved in founding and running the charity, she still finds time and energy to teach a few piano pupils. Kath is also an incredibly proud grandma to Oliver – something her own mum was robbed of due, no doubt, to her untreated sleep apnoea.
Samantha Backway, RGN, Sleep Specialist Nurse - Chairman
Samantha began her nursing training in 1987 and qualified as a Registered Nurse in 1991. She soon found her love of respiratory nursing and worked her way up the ranks of Sister.
Samantha took on the role of Sleep Specialist Nurse in 2009 at the Great Western Hospital in Swindon and at the time the sleep service was very new. It was run by a respiratory nurse who had set the service up but left shortly afterwards, and Samantha then had the huge and rewarding challenge of building up and developing the sleep service to what it is today – a very busy department currently looking after well over 4,000 patients on both CPAP and non-invasive ventilation, which is growing daily!
Sleep apnoea was in its infancy in the UK back in 2009 but Samantha’s experience of looking after patients on non-invasive ventilation helped her tremendously. She attended lots of conferences, seminars and study days, met with other sleep clinicians and soon found a great love for the work she does in sleep medicine. In fact, in 2017 Samantha was nominated by her patients for the Staff Excellence Award at her hospital, which she deservedly won!
Samantha, whilst wanting to do the best for her patients, joined the Hope2Sleep Private Support Group where she met Kath Hope and they soon became very good friends, and Hope2Sleep have been supporting Samantha and her team at their annual ‘Sleep Apnoea Support and Awareness Day’ in Swindon for several years. Not only does Samantha give her time after work to help support Hope2Sleep’s members, but Samantha goes on to say that her experience in the support group has helped her understand her own patients better, which in turn has made her a better sleep nurse.
Samantha has been an active trustee of Hope2Sleep and is now proud to have taken on the role of Chairman. She has a true passion in always striving for improved care and experiences for patients with sleep disordered breathing, and the Hope2Sleep Charity are privileged to have her leading our trustee board as we grow from strength to strength in our aim to help support as many patients and sleep clinics that we can.
Tim Brown – Vice Chair
Tim joined the Hope2Sleep Board of Trustees in June 2017 and was voted in as Vice Chair in January 2019 due to his valued commitment to the charity. He was introduced to and formed a close friendship with Kath Hope in 2010 during his eight years at Philips - a global market leader in sleep and respiratory care.
Tim left Philips in March 2017 as Product Manager UK & Ireland for their Home Respiratory Care portfolio, and brings to Hope2Sleep nearly 10 years of product marketing experience. In addition to general guidance and feedback on the running of the charity, Tim’s support includes all aspects of marketing as well as the development of corporate partnerships with industry parties.
Karen Danville - Treasurer
Karen brings a wealth of expertise to our charity. She ran her husband’s thriving business until he had a serious accident which ended his career and she also worked for several years at the local Citizen’s Advice Bureau. Unfortunately, she too had an accident causing a serious neck injury, but this still didn’t stop her giving what time she could as a Bereavement Counsellor for Cruse for 11 years, as well as nursing both her mother and sister with terminal cancer, so she has tremendous empathy with people suffering.
Karen herself had a TIA (mini stroke) and it was after realising the connection with undiagnosed sleep apnoea, she was shocked to discover she was a sufferer too. Even worse, she, along with support from Hope2Sleep, had to fight for this diagnosis and therapy. This stirred up the passion in her to join us, where she has taken on the role of treasurer, as well as tirelessly helping raise awareness and support sufferers.
Carolanne Murphy - Trustee
Carolanne works as an Early Years Practitioner with children under 5 and is also a Healthcare Support Assistant for the NHS. She is no stranger to sleep disordered breathing issues, as 3 out of 4 of her children have sleep apnoea – as does her husband, and she herself suffers from UARS (upper airways resistance syndrome) and uses a CPAP machine. In fact her own issues were undiagnosed for many years as she assumed her constant exhaustion was due to looking after the rest of the family with all the CPAP/VPAP machines they have in their home!
Carolanne is very passionate about sleep disorders and know first-hand what it’s like to fight for a diagnosis, and in fact she herself needed support from Hope2Sleep with the complications of her children’s diagnoses and therapy. Fortunately, thanks to her own successful therapy she has the energy and enthusiasm to support and empathise with others, and she is a true asset to Hope2Sleep – particularly due to the broad age range in managing sleep apnoea in her family, and the fact she is both a patient and carer.
Nick Dawson - Trustee
Nick has experience in establishing and running charities after a 3 year role as trustee (including time spent as treasurer) for a national charity. Nick’s work life has seen him undertake many roles within government departments over the past 27 years - more recently in the education sector.
Nick was diagnosed with sleep apnoea in 2018 following unsuccessful referrals to his local NHS sleep centre. With the help of Kath and the Hope2Sleep pre-diagnostic sleep apnoea screening service, he underwent further tests and due to the shock of these results, he had to attend an NHS clinic out of his area where he was diagnosed with moderate Obstructive Sleep Apnoea. Thanks to the support of Hope 2 Sleep he is now on CPAP and enjoying an improved night’s sleep. He is keen to use his experience from the charity sector as well as his personal experience to support other sufferers through his work with us.
Paul Gardiner – Volunteer Accountant
Paul is our volunteer accountant who makes sure we are compliant with all our financial responsibilities, namely; VAT, Pensions and Payroll. Paul also compiles monthly management accounts for Hope2Sleep and liaises with our external accountants, Streets Chartered Accountants.
Paul is semi-retired and currently works part-time for Axis Telecom as a Business Analyst. Prior to this he spent 30 years at BP Chemicals Hull as a management accountant.
Kath Hope and Paul Gardiner, along with their respective families, have been close friends for many years.
Paul is a fellow of the Association of Chartered Certified Accountants.
Martyn Coupland – Volunteer IT Specialist
Martyn began working with us as a volunteer in November 2018 last year as our IT specialist. By day he is a Director at Ensono, a global managed service provider in cloud computing. He is helping with internal IT needs, security, policy and an improved website and backend sales system.
Martyn was diagnosed with severe obstructive sleep apnoea in November 2017 and offered his services to us in thanks to the help the charity gave during his diagnosis process.
Kirsty Coupland – Finance Officer
Kirsty began working with us in November 2018 as an administrator to help look after the day to day running of the charity premises, sales of the necessary products which help so many people and is often at the end of our helpline, where she deals sympathetically, sensitively and confidentially to the many requests for support.
Kirsty holds 2 degrees, and when she joined the Hope2Sleep Team she had been taking a career break from her last post as a GP's receptionist to raise her young family. She discovered our charity after we helped signpost her husband for his severe sleep apnoea diagnosis in 2017 and has been learning about the condition ever since. Kirsty understands what it’s like living with a partner with sleep apnoea – as well as see first-hand the positive changes in her husband since diagnosed and treated.
Kirsty joined us as a staff member after volunteering to keep the charity running whilst Kath and John had their first holiday for years. She enjoyed the work so much (and is a true treasure trove to the charity with her many different talents) that we were delighted she agreed to stay!
John Hope – Office Manager
John, as well as being married to Kath since 1983, has been her constant support since she first began her passion in 2009 of starting Hope2Sleep as an unofficial non-profit, after recognising there was little support for people diagnosed with sleep apnoea. Due to seeing the incredible positive change in Kath through her own diagnosis, he was more than happy to work hard himself in the background with household chores and cooking, to free Kath’s time to continue her music teaching practice whilst building Hope2Sleep to the point it is today – a registered charity in huge demand!
John has had several occupations in his working life, and his last post was working on the railway, where as well as supporting Kath he also worked hard processing orders from our own bedroom in between his shifts. An opportunity arose for early retirement, and whilst he loved his job on the railway, he made the decision to retire early so that he could continue his work with the charity on a full time basis. He does admit he likes the fact that he and Kath have their home back now the charity are in their premises, and of course marrying Kath meant his name ‘Hope’ came in handy when choosing a name for the charity!
We are very grateful to Dom Joly, comedian and travel writer, who himself recently got diagnosed with severe sleep apnoea, has kindly given us his time to be the patron of our charity. Dom is very committed in helping raise awareness of sleep apnoea, as well as support the work of our charity, and you can see him in an interview on ITV's 'Loose Women' telling how shocked he was at his own diagnosis, in his efforts to help others who may be unaware they are suffering too! https://www.itv.com/loosewomen/dom-joly-opens-up-about-snoring-and-his-deadly-sleep-disorder-sleep-apnoea-could-have-killed-me
We are very privileged to have 3 very well respected, highly qualifed and passionate consultants as medical advisors of our charity, and we thank them for sparing their time in their busy lives to represent us:-
Professor Joerg Steier, Professor of Respiratory and Sleep Medicine - Guy's & St Thomas' NHS Foundation Trust
Professor Heather Elphick, Consultant in Paediatric Sleep and Respiratory Medicine - Sheffield Childrens' NHS Foundation Trust
Dr Ari Manuel, Respiratory Consultant, Sleep & Ventilation Centre, University Hospital, Aintree
We are also immensely grateful for all the people who join us regularly or occasionally as volunteers when time allows, as without these kind people it would be impossible to expand our work, and especially the 'behind the scenes' work and as we travel around the country at support and awareness events.
0300 102 9711